Wednesday, August 17, 2016

Resources for Caregivers: All 65.7 Million of Us in the United States Alone

According to Caregiver.org, there are 65.7 million unpaid Caregivers in the United States alone. 60% of those are women. Unpaid means that they take care of their patients at home because they are family members, friends, or in-laws. The resources for caregivers are definitely available, but often the Caregivers themselves are unaware of these resources.

The issue of finding the resources for caregivers is compounded by several factors:
  1. Caregivers are often so overwhelmed they don’t have time to even think about finding other resources.
  2. Many caregivers are not financially able to spend more money on hiring others to help.
  3. Available resource lists are often tucked away in the desks of Social Workers whose only contact is with patients who recently needed caregiver help.
  4. Many caregivers are of an age where using the Internet is not a familiar tool for them.

Briefly, item number 1 above is incredibly common. When traumatic medical events occur in a family, the disruption in the lives of those charged with caregiving is monumental. They may be working elsewhere. They may be in charge of children and all the needs of school, homework, laundry, grocery shopping, bill paying, auto maintenance, and other housekeeping duties. The trauma of the medical event becomes yet another item to schedule into their day. Therefore the concept of looking for resources doesn’t even enter their mind.
Second on the above list: most people assume that a “resource” means hiring someone else to come into their home to assist in their caregiving duties. Yes, it is one type of resource, but in itself it involves two other things. First, it requires money–possibly more money than is available. Second, the sheer responsibility of finding, hiring, training, and then monitoring that help may be more trouble than actually doing it personally.
Item number 3 above is something that is so pervasive, that it is virtually impossible to count the number of actual unpaid Caregivers. Immediately during and after the initial traumatic medical event, the family of the patient is usually in direct contact with hospitals and other facilities that have a plethora of resources to share. However, once the patient goes home to live, regular contact with Social Workers and other medical personnel dwindles and eventually disappears. Oftentimes the Caregiver is in charge of the patient for years. This year after year duty is the one that is impossible to figure into statistics of unpaid Caregivers. Those long-term unpaid Caregivers are far away from current trends in Caregiver resources.
Number 4 above is the most sad in my opinion. Elderly people caregiving for elderly ill spouses are the most isolated as their computer skills and Internet access may be limited. They may not be aware of the value of an Internet search for finding resources to help them.
In the interest of keeping blog posts shorter, in the next 4 blog posts, I will address each of the above 4 items in more depth. This is the beginning of a series. Stay tuned….

For more information about the book, see my personal website at http://dontstopthemusic.co
© 2016 Nancy Weckwerth

PRWEB Posts "Press Release for Don't Stop the Music"

Prweb, the online “go-to” place for press releases has posted the publisher’s press release on “Don’t Stop the Music: Finding the Joy in Caregiving”.
Here’s an excerpt:
“LOS ANGELES (PRWEB) JUNE 17, 2016
For many, Feb. 12, 1991, may have been an average day. For Nancy Weckwerth, it was the day that changed the course of the rest of her life. This was the day Nancy’s partner suffered a massive stroke.
For Weckwerth, a horn player, pianist and composer, her partner’s stroke meant changing careers more than once and embracing her role as primary decision maker, all for the sake of being sure the love of her life had access to the care he needed.
Now, 25 years later, Weckwerth has published “Don’t Stop the Music: Finding the Joy in Caregiving,” a retelling of the author’s own experiences in caregiving that she hopes will help the many others who are suddenly thrust into a similar situation. According to the Family Caregiver Alliance, approximately 43.5 million caregivers have provided unpaid care to an adult or child in the last 12 months.”
Read the full press release here: http://story.cd/AAE2yW  via @PRWeb.
For more information about the book, see my personal website at http://dontstopthemusic.co
On twitter @wecknan
© 2016 Nancy Weckwerth

Saturday, January 24, 2015

Paradigm Shift

In January of 2015 I had the opportunity to speak at an event entitled "Agents of Change" that occurred in Toluca Lake, CA. The dress rehearsal for the event was filmed and will soon be a video on YouTube. The link will be posted here as soon as it is online.

Below is the printed version of the speech that I gave. It is essentially the underpinning theme of the book, "Don't Stop the Music: Finding the Joy in Caregiving." I print it here for your information.



Paradigm shift is a term coined in 1962 by Thomas Kuhn, in his influential book The Structure of Scientific Revolutions.  He defined it as a change in the basic assumptions, or paradigms, within the ruling theory of science.

For example, at one point in time, the medical field believed that miasmacaused disease. However, once germs were discovered, this new information blew themiasma theoryout of the water forever. This new discovery created a PARADIGM SHIFT in the medical field. Once a paradigm shift has occurred, there is no returning to the original basic assumption. No one can ever return to the concept that miasma causes disease.

Since the 1980s, the term paradigm shift has also been used in the humanities to describe a profound change in a fundamental model or perception of events.

That said, let’s use an anecdote to give an example of a paradigm shift in the field of humanities.

Picture yourself in a subway train. A man enters with 2 young children. The kids are wild, running about the car, knocking over items stowed on the floor, screaming, kicking people, and are out of control. The father appears to be unconcerned and is not even aware how rudely his children are behaving. You go up to the father and say Sir, your children seem to be bothering other people on the subway car and I’m concerned for their safety. Is there some way I may assist you?” The father seems to come back from some other train of thought and repliesOh, Im so sorry. We just came from the hospital where their mother just died. I guess theyre upset and I’m in shock and unaware of their behavior.

Here’s the paradigm shift: now that YOU know the background story of what occurred in their life, has your perception of the events in the subway car changed? Has your opinion of their situation shifted? Are you more forgiving of the children and of the father? Since your knowledge about the events in their lives has changed, you have experienced a paradigm shift.

Taking this same concept into your own lives, what areas of your life would be affected by changing your perception of a situation: creating paradigm shift in your thinking about yourself?

1 Do your life Goals need an update?
2 Is there a situation in a relationship where an Attitude causes friction?
3.   What about your Work ethic? Do you always work your hardest at your job, giving your employer the full value of your skills?
4 What about your Self-confidence and your self-esteem? Would you like to be more confident?
5.   What about any Self-judgments you carry with you each day? Would you like to be able to release those?

If you answered yes to any of these questions, that is an area of your life that might be transformed by a paradigm shift. By accepting personal responsibility for your issues, by changing how you think about
any of these areas, or if you let go of some old information that no longer serves you, it may shift your thoughts in a different direction. After all, thoughts, are only thoughts and can be changed. You could
create your own paradigm shift, and live a more contented life.

The handout that you have today has a space for you to write down an area of your life where you are not satisfied with the current state of that area. Please take a moment now to jot down the first thought that comes to your mind: what would YOU like to change about your life?


Next there are three lines where you can brainstorm concepts of what you could do to change your paradigm in a way that might affect how your view your current situation. After all, a paradigm shift occurs when YOU change the information you have about a situation so that your perception of that situation is forever altered.

If you don’t know what you can do to alter your perception of your situation, then send your request to the Universe and ask Spirit to give you a way to change your perception. Or, sit with the person next to you and share your need, have that person give you an idea, and you do the same for them. Please ask
someone you don’t know because sometimes a total stranger has a more objective answer for you.

Now that we have defined paradigm shift and thought about how it relates to us as individuals, I have some questions for you to think about in a specific area of many of our lives.

Are any of you baby boomers whose aging parents can no longer care for themselves as they used to? Are you in a situation where you are now a Caregiver for a spouse or family member? Are you frustrated by the duties of being a Caregiver, or if you’re not a Caregiver YET, are you afraid that Caregiving for someone else will infringe upon the freedom you have in YOUR life?

In 1991, my husband, John, had a massive stroke which left him hemi-plegic and unable to speak. I am his Caregiver. He is my dearest friend: I would never abandon him in his hours, days, weeks, or years of need. Prior to the stroke, we were both professional musicians. As performers and composers, we were building fabulous careers in Los Angeles. Each day was full of the joy of creating and performing music. The stroke instantly took out two careers: his and mine.



We have now had 24 years of paradigm shifts that have brought us to a totally new life of Joy. Our world has been redefined over and over again by external forces. It is very different from what we originally planned. However, because of John’s courage and some tenacity on my part, we have not stopped the music in our lives.

I have now written a book called “Don’t Stop the Music: Finding the Joy in Caregiving. It will be published by Balboa Press, a division of Hay House in 2015. The purpose of the book is to describe how John and I have come to live a life of great Joy because we accepted the paradigm shifts in our lives. We did not stop the Music, we have just changed the music that we make.

In the book I describe many situations that created extreme fear on both of our parts. Fear often arises because events occur that are unexpected, traumatic, or physically injurious. This fear is a natural emotion that is programmed into our consciousness as a means of triggering our fight or flight response. Once weve gotten past that initial fight or flight response, we have the opportunity to review the situation at hand. We get to choose how we react to that situation. Yes, we CHOOSE.  We can choose to react well, or we can choose to react poorly.

We can choose to accept the change in our lives, or we can resist it. Resisting often occurs because we are operating on old information, or worse, on someone else’s concept of how we SHOULD act. If we continue to hold on to those old ideas, we are living in the past: we are resisting change, and pushing away the opportunity for the joy that results by accepting a paradigm shift.

In the book, I also describe the many paradigm shifts that have occurred. I discuss our learning, how long it took to learn those lessons, and how I felt along the way.

As an example of one of my many shifts, when John was in the first hospital a few days after the stroke, I was so naïve, I had no idea what a stroke even was. I was in his room when a doctor finally arrived to speak to me. I asked him what a stroke was. He told me, and said John’s stroke was so severe that he would not be able to work for at least two years, if at all, ever again. My reaction to losing him and all of his income was so strong that when the doctor left the room, I literally crawled on the floor and hid under his hospital bed while I sobbed. By the next day, I realized that I had become the sole financial provider for our family. There were no longer two people working, there was only me, plus I would have to take care of John. The instantaneousness and finality of the event was as profound as an accidental death for me. Only I was left with an invalid. This was the largest paradigm shift I had to make.

As I stated earlier, the purpose of the book, Don’t Stop the Music: Finding the Joy in Caregiving” is to tell the story of our transformation spiritually, musically, and joyfully into a new life. It is our highest goal to share our success with others, so that we may give back what we have learned.  We have a neMusic to share with everyone.

There is an old saying "If a butterfly flapping its wings in China can cause a tornado in the Great Plains". say to you, be a butterfland leyour paradigm shifts change the world." 

Namaste.